Story of Resilience: “I Woke Up in Pain, In a Dark Room” – Then He Discovered Nursing

Story of Resilience: “I Woke Up in Pain, In a Dark Room” – Then He Discovered Nursing

When Cade Conville took the podium at the Fall 2021 Accelerated Masters in Nursing Pathway Senior Recognition Ceremony, what could have been a typical award speech turned into an emotional account of his path to nursing and his story of resilience.

Six years ago, Conville was a gunshot wound victim. The bullet injured the left side of his face, and he was rushed into life-saving surgery.

“I woke up in a lot of pain, in a dark room. I was alone except for my nurse. I couldn’t do anything but cry.”

“I woke up from later that night and realized I was still alive. I was relieved, but at the same time I woke up in a lot of pain, in a dark room. I was alone except for my nurse. I couldn’t do anything but cry,” Conville said. “I was a 21-year-old and supposed to be this big, strong athlete, but I felt weak and powerless. But my nurse stayed there, comforted me during my worst moments. That inspired me to want to do something to help other people.”Cade Conville, MSN in class.

Over the next few months, Conville underwent several surgeries and faced a long road to recovery. His initial plans—playing college baseball and attending medical school—were derailed as recovery took a mental and physical toll.

But the support of friends and family and an opportunity at UAB Hospital helped him rediscover his passion.

“It was very difficult for me to take my next steps forward in my education, but the one thing that always spurred me on a little bit, or kept my feet moving, was my nurse that night after surgery,” Conville said. “I can’t remember her name, and I hardly remember her face, but I will always remember what she did for me.”

His nurse’s care led Conville to seek out ways to help others. When a family friend and Senior Director of Emergency Services at UAB Medicine Frankie Wallis, DNP, NP-C, NEA-BC, COI, reached out about a shadowing opportunity in the emergency department, Conville jumped at the chance.

“I knew Cade wanted to help people and make a difference, and I said that if he wanted to be in health care, UAB was the place to be,” Wallis said.

“It was very difficult for me to take my next steps forward in my education, but the one thing that always spurred me on a little bit, or kept my feet moving, was my nurse that night after surgery.”

After shadowing in the emergency department, Conville knew it was the right next step.

“UAB is such a big, bustling hospital. I recognized all of our patients in need, but there is also an excitement because there was so much we could do at once,” Conville said. “It brought me back to this team atmosphere, where I could be part of a group that cared about something, where everyone pulled in the same direction. That spoke to me—I put my resume in the same night.”

Conville took a job as a patient care technician and thrived in the experience, but eventually, he felt compelled to return to school and further his education. Through the support of his family and Wallis, he applied to nursing school.

“I looked up to the nurses I worked with, and it brought back the memory of the young woman who helped me that night,” Conville said. “I thought that if I could do the same thing for someone else, it would make all the hours of extra work worthwhile.”

After consulting with mentors, including Wallis, and doing research of his own, Conville decided the Accelerated Masters of Nursing Pathway at the UAB School of Nursing was the best step forward. The program is designed for students with a bachelor’s degree or higher in another field and creates an accelerated track toward licensure and a master’s in nursing.

“I knew the program was for me. I already had a degree under my belt, but it also felt like I had the time management skills to take on such a rigorous program,” said Conville, who also has a Bachelor of Science in molecular biology.

“I’ve had several other staff members who have come through the AMNP program,” Wallis said. “It’s a great program, and when I talked to Cade about it, I had every bit of belief he could do it. I talked to him about pursuing this degree, while cautioning him about the tough road ahead. But at the end of the road there is a reward.”

When Conville started the AMNP program in fall 2020, he found another team in pursuit of helping others. Faculty offered continuous support and encouragement throughout challenges, he said, and provided the tools necessary to move forward.

“I looked up to the nurses I worked with, and it brought back the memory of the young woman who helped me that night. I thought that if I could do the same thing for someone else, it would make all the hours of extra work worthwhile.”

“One day I sat down with [AMNP Pathway Director] Michael Mosley, MSN, CRNP, ANP-BC (MSN 2012) and we talked about why he pushes us so hard to get the right answer and to understand why we got that answer,” Conville said. “He said that when you’re working with a patient, you’re not just checking boxes. And while you can make two or three mistakes on a test and still get a 96, if you make two or three mistakes with a person, you can really hurt them. That told me a lot about him as a person—he truly cares about us and wants us to be the best nurses possible.”

Conville also made an impact on his peers in his AMNP cohort. They selected him as the fall 2021 recipient of the Florence Nightingale Award, a recognition of his passion for quality of nursing care and pursuit of excellence. It was also the reason he stood up to speak about resilience at the Senior Recognition Ceremony.

“This award reiterates Cade’s personal characteristics and his commitment to nursing,” Wallis said. “It shows his dedication and how well he works within a team, how he incorporates team theory to develop relationships with his peers and colleagues. He is a great young man with great potential, great abilities and he will move forward to do great things in the future of health care.”

Conville finished the AMNP program in fall 2021 and accepted a job at UAB Hospital in spring 2022. He wants to further his education and work toward a career in nursing management.

Conville continues that refrain of resilience, for his future and the future of nursing.

“I know the state of nursing isn’t perfect right now, that a lot of us who are graduating and going into the workforce have a difficult road ahead of us,” Conville said. “We’re joining health care in one of the most difficult times to be a health care professional, and we just have to be as diligent as we possibly can. We need to understand that our patients need us, and we need each other. We’re going to get through this together. While there are a lot of tough times going on, it’s still a great time to be a nurse.”

Conquering a Disability and Becoming a Nurse

Conquering a Disability and Becoming a Nurse

Nursing can sometimes be a difficult profession for many of the men and women who choose to give their lives to the service of others. However, many nurses bring additional challenges to their calling, such as physical and mental hurdles that extend beyond the nursing experience. Although physical disabilities can make nursing hard at times, mental roadblocks are just as common and essentially hidden from teachers, coworkers, and sometimes the nurses themselves.

The good news is, though, dealing with an invisible challenge isn’t insurmountable.

For example, attention deficit disorder (ADD) can cause difficulty focusing, brain fog, and trouble concentrating. Nursing school requires attention to detail and focused concentration. Yet, this is just one of the many challenges that nurses can overcome—and many have.

For instance, Carin Shollenberger, RN, CRNA, has had ADD since childhood. She wasn’t diagnosed until well into adulthood, and she could have let it hold her back.

“Not being diagnosed impacted my ability in succeeding to my highest potential in nursing school and anesthesia school,” Shollenberger says. “With ADD, the ability to focus on what you are told to focus on is nearly impossible.”

When nurses are drilled on how to use their senses to assess patients, those with ADD must marshal all of their will to get the job done. Success is doable, but it requires a strong effort and indefatigable motivation to overcome a brain that fights back.

It isn’t merely issues with focusing that can potentially stand in the way of a successful nursing career. Post-traumatic stress disorder, or PTSD, can make entering the nursing field complicated. Some of the tasks asked of nurses can trigger unwanted emotions and feelings.

Miranda Gallegos, RN, is one such nurse who has succeeded in nursing and even flourished while facing PTSD. Like most nurses—those who enter nursing with relatively few challenges and those who have to work harder to attain the same goals—she dedicated her life to making nursing work for her no matter what.

In fact, Gallegos states, “I found nursing school to be a welcome distraction and almost a period of remission. I had no interest in my peers so I could 100 percent focus on my studies. I did have a tendency to zone out or dissociate in times of stress.”

Gallegos, a hard worker, took refuge in the high attention to detail that nursing requires. In her case, her PTSD symptoms could help her to push through and succeed.

And this is the point: nurses who are faced with physical and mental challenges can become excellent nurses. Nursing may seem intimidating, especially to someone who is struggling. Nursing can sometimes seem impossible as a profession with a diagnosis of an attention disorder.

Yet these two women have shown what can happen with effort.

“My tip to prospective nurses would be to seek professional help sooner,” advises Shollenberger. “I would have told my past self that it was not normal to procrastinate nor was it normal to have the inability to focus on school work while most everyone else could. I didn’t know that I could be helped!”

Gallegos agrees: “I found that nursing school really empowered me to get help. Once I got help for my conditions my grades went from B’s to A’s. I didn’t know I had something wrong at the time until through school I learned about these disorders and realized I fit into a lot of these categories and symptoms.”

Surely, early detection is key. If you are having trouble with focusing or intense anxiety, these are symptoms worth checking out. Nursing is hard enough as it is, and no one should work with any hindrance that can put a patient in danger. Examine yourself. Know yourself. Discover what your needs are to make nursing a success.

Shollenberger found that both nursing school and anesthesia school could prove challenging before she knew about her ADD.

“In nursing school, I did not have a husband or kids. My friends in the dorm got a visit from me several times a day when it was time to study. In anesthesia school, it was even tougher with a family. I wish I would have been diagnosed and treated early on…it wouldn’t have been so stressful.”

Gallegos found that her PTSD actually helped her be a better student and a better nurse.

“PTSD has a known symptom of hyper vigilance and I use that to my advantage. I am able to quickly scan whole pictures and scenarios to develop my assessments and my priorities,” she explains.

These nurses have documented challenges they faced when they entered the profession. Both faced them head on and used their diagnoses to make their skills better than they may have been without them. Although they both walked a hard road at times, they have succeeded well in the profession.

What is it that helps them overcome what could be a daunting challenge? What should other nurses know about traveling down this road?

“My tips for other nurses is to just keep your head down, study, and do your work,” Gallegos explains. “Focus on lots of self-care, whatever that means for you. Don’t worry about what other people are doing.”

Nurses tend to compare themselves to others, trying to be the super nurse that doesn’t need any help. For someone facing additional challenges, this could be disastrous. Focus instead on introspection and using your unique skills to make yourself the best you can be.

Shollenberger sums up her positive nursing journey this way: “Before my diagnosis, I felt like a failure because even though I got good grades, my struggle to get them was real. I felt even more of a failure in anesthesia school because I couldn’t skate by the skin of my teeth anymore. Once I had the diagnosis, a lot of what happened in my life made sense, but I still had to work to overcome the adversity. Medication helped but knowing in my mind that I could overcome this was an even bigger push to succeed.”

7 Tips for Nurses with Disabilities Going Back to Work

7 Tips for Nurses with Disabilities Going Back to Work

Going back to work after a disability can be tough for anyone, and especially for nurses whose jobs are incredibly demanding. Returning to work can seem like an insurmountable obstacle on bad days, but don’t think about hanging up your stethoscope quite yet. There are plenty of legal and social resources for you to fall back on if you’re a nurse with a disability. Read on to  discover seven strategies for nurses with disabilities who wish to return to work.

1. Know the Americans with Disabilities Act well.

Passed in 1990, the Americans with Disabilities Act (ADA) is designed to protect individuals with disabilities from discrimination in a variety of settings, including jobs, schools, and transportation. (Additional amendments went into effect in 2009.) Many different conditions may qualify as a disability if they significantly impair your ability to engage in one or more major life activities. Categories of disabilities include neurological, musculoskeletal, respiratory, cardiovascular, digestive, immune, circulatory, lymphatic, skin, endocrine and more. In the U.S., the ADA is the single most important law for dictating how employers can treat employees during and after the hiring process, so study up on the ADA and get intimately familiar with what it means for you.

2. Learn your employer’s benefits package.

Beyond the ADA, your employer might also have certain benefits or protections that are relevant to employees with disabilities. For starters, see if your employer offers any short-term or long-term disability insurance. Your employer might also provide Family and Medical Leave Act (FMLA) and/or stay-or-work or return-to-work policies in the context of employees with disabilities. If you have questions about what your employer does and does not provide, the HR department should be able to answer your questions. If you need accommodations in the workplace as a result of your disability, such as the use of a wheelchair, you’ll also need to discuss that with HR (they have a responsibility to work with you on accommodations under the ADA).

3. Seek out other nurses with disabilities.

No one will be able to understand your challenges quite like another nurse with disabilities. Even if they have a different disability from you, they’ll still be able to empathize about issues such as working with an employer to get necessary accommodations or understanding the ins and outs of the ADA. Ideally, you’ll be able to find an experienced nurse or two who can serve as a mentor and help guide you through the transition of returning to work with a disability. Even if the nurses aren’t experienced enough to serve as your mentors, you will still benefit greatly from building connections with others who know what you’re going through.

4. Build a support network for yourself.

Your connections shouldn’t stop with other nurses with disabilities. Other nurses, especially your immediate coworkers, can be a huge help as you transition back to your job. Of course, this depends on how supportive your company culture is, but your coworkers might be able to help you brainstorm small changes that you all can make together to make your return to work more seamless. (And if you need any accommodations or other changes, you’ll need to discuss them with your supervisor for sure.) If you have a spouse, partner or roommate, they can also help you with non-work tasks—like cooking and cleaning—to make your return to work less stressful as well.

5. Keep your license and certifications up to date.

State boards vary in terms of what certifications they require from disabled nurses, so look up your state’s guidelines and make sure that you’re in compliance with them. Wherever you leave and whatever the state requirements are, make sure that you renew your nursing license while you’re on active duty and that you keep up with any and all continuing education requirements. Keep in mind that sometimes additional training or refresher workshops may be necessary before you can renew your nursing license. Keeping your license current is important because you don’t want anything to jeopardize your standing with your employer and everything that goes with it (insurance, paycheck, etc.).

6. Get involved in professional organizations.

There are many professional organizations available for nurses, including the National Organization of Nurses with Disabilities (NOND), which works to promote equality for people with disabilities and chronic health conditions in nursing through education and advocacy. Beyond NOND, there are plenty of other associations for just about every nursing specialty and issue available, so there’s bound to be something that connects with your interests. Participating in these organizations will help you build your network and advocate for nurses with disabilities within the profession. This network will be critical if you decide that you need to make a career change because of your disability (see the next tip).

7. Explore new specialties to find your niche.

No matter how accommodating your employer is, after returning to work with a disability, you might decide that it’s in your best interest to make a career change. If that describes your situation, start exploring other options. Perhaps you can find a job where you don’t have to be on your feet as much, or you can transition to a lower-stress unit that won’t cause your symptoms to flare as often. Reach out to your fellow nurses, especially those who also have disabilities, and ask them about the pros and cons of their positions and how accommodating their employers are. If you don’t feel like you have the right experience to make the career change you want, you can also consider going back to school for additional certifications or even an advanced degree to help you make the leap.

Putting on your scrubs and returning to nursing work after a disability can be daunting, but thankfully there are resources available for nurses in this exact situation. Do as much research as you can about the ADA and your employer’s policies, and don’t be afraid to ask for help or advice if you need it. Plenty of nurses with disabilities do meaningful work and take care of their patients very successfully, and even if you need accommodations, we know you can do the same.

Should You Request Accommodations at Work?

Should You Request Accommodations at Work?

As a nursing student, asking for accommodations can help level the playing field by giving you a different environment or approach so you can adapt to any kind of physical or cognitive disability. As mentioned in a previous blog, extra time on tests, a quiet environment , or possibly even a note taker in class are all accommodations that can help nursing students perform their best.

Once you graduate and enter the workforce, how can you make sure you have accommodations you might need?

Many laws in the Americans with Disabilities Act prevent discrimination or retaliation based on accommodations, but the workplace isn’t always as adaptive to requested accommodations. If you know what you need, can request what has worked for you, and the accommodation will fit into the required job description, then your chances of successfully blending the two are much greater.

Keep in mind realistic expectations. If you can’t lift more than 30 pounds due to a previous injury, that will restrict you from doing some specific hands-on roles. But you might be able to with assistive devices. And if you have a hard time writing discharge information or charts in any kind of excessive noise, knowing that will help you prepare for what you need—possibly just a quiet space. If hearing loss makes listening difficult, amplified equipment can help. But not being able to lift heavy things, needing a quiet place to do administrative work, and progressive hearing loss never mean you can’t be an excellent nurse.

In fact, asking for an accommodation when you know it helps you do your job better keeps nursing standards high and ensures patient safety. Asking for an accommodation at work is often done through the human resources department where they can help guide you and determine what will best suit your needs and those of your unit or department. You might be asked to provide medical verification or some kind of official documentation of your disability.

From that point on, you are not obligated to share the reasons of your accommodation with anyone else at work. Accommodations are often a personal matter and many nurses fear a pushback or a stigma if others realize a change has been made for their benefit.

Is that fear realistic? Possibly. Revealing too much personal information in the workplace always has the potential to return to you in unexpected ways, so it is better if you keep the details to yourself. As long as your workplace helps you and assists you in working out a new approach or by offering different equipment, you can continue to do your job with the exacting precision expected of nurses.

Deciding when and how to talk about accommodations depends on how big of an impact it has on your work and then you should consider the impact it might have on your career. You don’t want to mislead a potential employer and you also don’t want to do substandard work because you are afraid to disclose your need for an accommodation in your current role. For example, if you have progressive hearing loss, but it is not impairing your job now, you might choose to wait a while to disclose. But if you are having trouble haring through a stethoscope, you cannot wait to bring that to the attention of your employer so you can get assistive equipment.

The decision is personal and weighing when and how to tell an employer is crucial to making sure you can do your job while also ensuring you are meeting the high standards expected in the nursing profession.

A Day in the Life of a Nurse with Dystonia

A Day in the Life of a Nurse with Dystonia

You might ask how a wannabe artist/photographer ended up working nights surrounded by medical equipment and really sick people. I blame it on my father. Of course, he’s not here to defend himself anymore, but take my word for it, there was no way that he was going to let any of his three daughters become starving artists.

So, now I’m a semi-starving nurse. When I started (not all that long ago…in dog years), my salary was $8.65 an hour. I do earn a bit more these days, but Bernie Madoff never solicited me for investment opportunities. What’s rather interesting is that we seem to pay more for interior decorators than we do for the people we depend on to save our lives.

I put aside artistic dreams for the reality of mastering the science and art of critical care nursing. There was this side of me that was fascinated by some of the “big” questions in medical care, such as: “What do you do when all the body’s organs start failing?” and “How do you help those people who are truly suffering without resorting to Jack Kevorkian measures?” Solving analytical problems humanely seemed far more rewarding than photographing magnificent images (although I still find tremendous pleasure stealing away and capturing the world through a viewfinder).

Oddly enough, my professional journey through medicine intersected with a personal medical condition—one that would remain undiagnosed and untreated for five years. Some doctors said that my facial tics (e.g., hemifacial spasms) and strange pains were due to stress or some hysterical “woman’s disease.” Yes, we’re talking this century.

Eventually, I picked the right door—it happened to be at Mount Sinai in New York City—and walked out with a few names and treatments for a disease that affected my head but was not “in my head.”

I started my nursing career with dysphonia, cervical dystonia, and even generalized dystonia. Early treatments might have been much more fun if they were given for cosmetic reasons, but the Botox, Myobloc, and eventually Deep Brain Stimulation (DBS) were prescribed to ease some of the less than glamorous symptoms.

Now, how much trust would you put in a nurse who twitched and twisted? Not much. So, at first, I worked in a soft cervical collar that allowed me to perform sensory tricks that convinced me that my body was aligned and not twitching and twisting.

Well, that didn’t last too long. I thought I was doing a terrific acting job, but as patients began asking me, “What’s wrong with you? Are you in pain? Should I call a doctor, a nurse?” I knew the gig was up. Since retirement at 30 was not exactly an option, I figured out a way to continue doing what I loved despite the pain and the drugs and the brain surgery. Has it been worth it? Yes. Am I an effective nurse? Ask my patients. Do I wish I could wake up and discover this has only been a long, bad dream? You bet. However, until a magic wand appears, you can find me at an intensive care unit doing what I love despite my physical limitations.

How do I manage? I’ve got the system semi-figured out. No one wants to work nights and weekends. I do. It’s not easier or quieter or better paying; it just makes me that much more

What’s it like to work from 7:00 at night to at least 7:30 in the morning? First, you should know that when you start at 7:00 p.m., you have to be at the hospital way before then. And, if you live in New York City (NYC) and happen to have dystonia, like I do, you should probably start out the day before. Find me a day without gridlock in NYC, and I’ll bet it’s either a national disaster or a holiday weekend.

Within the first half hour, we have the changing of the guard. The night team leader makes assignments and reports are exchanged. Let me take you with me as my shift begins.

A Typical Shift

7:30 pm: I have two patients, one who is on a ventilator and will probably be bleeding all night since a drug she has been taking for migraines, Methotrexate, has eliminated more than her headaches—it has eliminated the ability of her blood to clot. Oh, and her mouth is filled with packing material. My other patient weighs about 300 pounds, has pneumonia, and is in the second stage of lung cancer. How in the world am I going to turn her over? I should tell you that despite my height, I weigh slightly more than 100 pounds. I also have wires in my neck (no, you can’t see them) that connect a pacemaker to my brain. These wires are not industrial grade—they can snap. This would not be a good thing for me or my patient. I will deal with this issue later. I have work to do.

7:45 pm: I review the computerized order checklists to make sure what medications are due at 10:00 p.m.

7:50 pm: A family member asks for coffee. This is not a big deal except that walking with a steady, even gait is not my strong suit. With a rather interesting weave, I deliver hot coffee. No spills, no burns, no thanks.

8:30 pm: I stop in to see patient #1. The oral packing is bloody. The bed is bloody. It’s time to call the Ear, Nose, and Throat (ENT) residents. Her platelet count is only seven. Luckily, she is sedated, and her vital signs are holding steady.

8:50 pm: I see patient #2 and hear gurgling sounds. She is not gargling. You do not have to be a medical whiz to know that this is not a good noise. Should you have a medical background, you might recognize the sound as a signal that there’s water in the lungs. I call it a “wet” sound, and since this patient has also refrained from urinating for most of the day, I’m betting that she will be much, much happier if I suction her. I do. She is—and I even hear a faint, “Thank you.” I like this lady (but please, don’t fall on the floor).

9:00 pm: The ENT residents have ordered platelets for patient #1. Does that mean that I get them ASAP? No. That means I now have to call the blood bank and grovel. “I need them in a hurry.” Translation to their reply of “Yeah, yeah” (and in a Jamaican accent it sounds like “Ya-di-dah”): “You’ll get them when I get to you on my list of things-to-do, people-to-see, and dinner-toorder.” Am I happy? No. Is this stressful? Yes. Does this make my straight hair curl and my dystonia symptoms go away? Take a guess.

9:30 pm: I have got to work on my begging and pleading skills. They do not teach this in nursing school. The platelets have yet to be delivered, and no one has even called from the blood bank to say, “Come and get them,” or even more unlikely, “We’re on our way.” So, I call them again. Were they (a) delayed or (b) forgotten? My hunch is that the order was still sitting on the “to-do” pile.

10:00 pm: My 300-pound patient needs to be turned over for a skin assessment. This is not good. Before getting a chance to figure out this physics problem, I add two bags of antibiotics to her IV. As I’m doing this, it occurs to me that I’ve been on duty for a while, but I haven’t had a chance to enter anything about my patients into the computer. I’ll do it now. No, I won’t. Alarm bells go off. My other patient’s blood pressure is dropping. This is when all the years of training and experience pay off. I react automatically.

10:10 pm: I run into the drug room, and if you’ve ever seen someone with dystonia run, it is not going to rate an Olympic-scored 10 for style points. I grab a bag of premixed intravenous Levophed, a medication that’s administered to raise blood pressure—something I surely do not need. My heart is pumping away like I might actually have to break the sound barrier. I dash back to my patient’s room, hook it up, and remain by the bedside for the next half-hour.

10:45 pm: The bells are ringing, and they are all for me. Has anyone done a study on how many things a single person can do at the same time? I need to clone myself (and this time without dystonia, please). Okay, who gets priority: the bedpan seeker or the hungry patient? No contest.

11:00 pm: A knight in shining scrubs appears: Stu. He helps me turn my 300-pound patient. That’s the good news. Why is there always bad news? Suddenly, her oxygen level is doing that downward slide. Please, don’t make her need to be intubated or put on a ventilator. I call the resident on duty and ask for a C X-ray order. I hope she is not retaining fluid. I am retaining stress. This does not bode well for my next activity: writing status reports.

11:20 pm: I start off with a bang, but my hands have a mind of their own. I think “write.” They think “I’m cramping up, honey.” They win. Writing will come later.

11:42 pm: Half a miracle: C X-ray done. Patient’s blood pressure has stabilized. The blood bank remains a “no show,” and I really have to eat something and/or go to the bathroom. Can you get scrubs from NASA? Those spacesuits could work.

11:55 pm: I make an executive decision: I’m going to the blood bank for my patient’s platelets. If we needed them before, we really need them now. This isn’t an order for pizza.

12:10 am: Speaking of pizza, I’m still hungry, but if I don’t sit down for five minutes I may fall over. ICU nurse hits the floor. Patients and coworkers not impressed. Okay, now that I’m sitting, I look up at the clock and realize now would be a good time to start all the chart work. For most nurses, this would be slightly more relaxing than the dramas taking place at the bedside, but with dystonia it’s not quite so easy. In fact, it’s more than just a “pain in the neck,” it causes hand cramping and pain. So, I’ve learned to master the art of two-fingered typing. No speed records will be broken tonight.

12:15 am: The formerly illusive platelets are now finding a new home in patient #1’s bloodstream. However, patient #2 doesn’t look good and her breathing is labored. I think she needs more than suctioning, so an order goes out for a diuretic to get rid of some that water. This time we go for something a bit more formidable: 40 mgs of IV Lasix.

1:10 am: Some of my charting is completed, the platelets have infused, the Lasix seems to be working, but it’s time to turn both patients over. I still haven’t eaten. In the background, I hear a nurse arguing with the resident on-call about an emergency room admission. What’s new? There are not enough nurses on duty tonight. We are so short-staffed that I already know that coming off duty in the early morning is not going to be on my chart. Why? If you’re not in nursing, you might not know the mantra: “NOT documented, NOT done.” Remember my typing skills? This is an obstacle to nurses with dystonia.

1:30 am: I notice bloody urine coming from patient #1. With dystonia, you learn to make accommodations and work around the physical limitations. A secret: I usually rearrange the patient’s room so that everything is in my line of sight.Wondering if her liver is failing, I decide to draw her blood and send her lab work off early. She will need more platelets—she is not clotting well.

1:40 am: A patient is dying at the other end of the unit. He’s only 20 years old. The family is living by the bedside. No matter how many times I’ve seen this drama unfold, it never gets any easier.

2:10 am: Now that all the “labs” (as we call them) and diagnostic tests are completed, patient #2 raises my blood pressure to a nightly high. Her heart has gone into a lethal arrhythmia. Running into the room, I pound her on the chest, hoping beyond hope to get a normal rhythm to return. My neck is killing me. The precordial thump works. An EKG and complete labs are ordered. Uh oh, her oxygen level has dropped again. Does she need even more Lasix?

2:40 am: As I’ve now become to feel quite possessive of patient #1’s platelet activity, I feel like celebrating as her number goes up from seven to 24! Just for good measure, the ENT guys order more platelets and some liver function tests. Her blood pressure has been stable. I finish my computerized charting entries. However, due to the dystonia, my arms hurt from hanging bags of platelets on a barely unreachable ceiling pole. What do shorter nurses do?

3:00 am: The few of us on the unit tonight have been running, for what seems like forever. I do not want to come back as a hamster. Forget ordering take-out dinners, forget about even eating the healthy snacks that some of us have packed. In between ringing bells and critical care nursing, we gulp down chips, soft drinks, and the unhealthiest snacks imaginable. What if a dietitian happened to decide to spend the night here? We’d have to find her a bed.

3:10 am: The 20-year-old patient dies. I feel sad. His parents were at the bedside. Morgue care is ordered.

3:30 am: “My” platelets are ready. I ask the unit clerk to pick them up as well as stop by the pharmacy for some newly ordered antibiotics. This is not a medical mercy mission to a third world country, but you’d never know that. The pharmacist, right here in this very large, very busy, NYC hospital decides to let us know in no uncertain terms (read: venting) that the pharmacy doesn’t have the variety that was ordered. Am I in a new Twilight Zone? What kind of pharmacy is this?

4:00 am: Meanwhile, back on the floor, patient-turning is the next activity. What could be worse than trying to perform this task alone, especially when the bed and its surroundings are soaked with diarrhea? This is a job for the true angels of nursing: housekeeping. I clean the patient, giving her a back rub as well as a respiratory treatment. Before leaving the room, I do a platelet check.

4:30 am: Platelets are done. Will this shift ever end? Whatever could go wrong has already happened, I think. My feet hurt. Note to self and other would be nurses with dystonia: Clogs might as well be three-inch heels. My feet turn inwards, but my clogs do not. A new ER admission arrives on the unit. The few of us left standing all help the patient settle in. Do you think that any of us are contemplating Nurses’ Week every May? No. We just want to sit down and go home.

4:45 am: Some of the routine things that nurses do are no longer easy for me to accomplish without help. Night nurses are responsible for changing IV tubes for new ones. This used to be a nonevent, but now I can’t open the packaging without using scissors or a clamp or a helping hand. It’s frustrating.

5:10 am: A minor miracle: My paperwork is up-to-date, and there are only two more hours left to this awful night.

5:22 am: A colleague is having trouble inserting an IV. I offer to help. Even though I am unable to turn my head the “right way” anymore, I can do IVs by instinct. With dystonia, you learn to make accommodations and work around the physical limitations. A secret: I usually rearrange the patient’s room so that everything is in my line of sight. There’s another thing that I have to constantly be aware of since I had DBS: electromagnetic interference. All those security devices may be great, but they can cause havoc with my pacemaker, which goes to my brain rather than to my heart. This, among other things, is anxiety-producing, so my neurosurgeon has me taking a mild dose of Klonopin to reduce stress. Did I remember to take it this  evening/morning? No. I will pay for it on the bumpy bus ride home.

5:47 am: An alcoholic in withdrawal wanders out of his room. His IVs are in disarray, he has a bloody gown, his EKG monitor is off, and he announces to all of us that he is ready to leave. Perhaps we should call the bellboy for his luggage and have the front desk prepare his bill. He resists our cajoling him back to bed and then hits one of the nurses. We call security and the docs. He isn’t listening to anyone.

6:00 am: Perfect timing. The head nurse is now walking down the hallway as the alcoholic is making his way to the nurse’s station. He is using four-letter words and making comments that will not be printed in The New York Times. Where is security? Are they in cahoots with the blood lab people? I really don’t want to be a punching bag, even if I’m beginning to feel like one. If my muscles get any tighter, I may explode.

6:10 am: Security arrives. Using less than spectacular intervention skills, they tackle the patient. Now what? We decide to ship him to the psych ward…stat!

6:24 am: Check patient #2 and discover more diarrhea. She is producing the type of diarrhea that is irritating to the skin and induced by antibiotics. To make matters worse, this 300-pound lady can’t breathe when she is in a prone position. Getting her out of bed would be impossible. I only weigh 115 lbs. Can it get better than this? Sure. There’s no protective cream available. I call my knight in scrubs, Stu, and we clean her up once again. Now I do the “uh-oh” check. Are my neck wires still intact? Yes. I can exhale.

6:45 am: Go back to the charts and enter final vital signs. Also need to compute things like intake and outtake of fluids. Have you ever had to estimate the amount of diarrhea produced? I must have missed this lecture in nursing school.

7:10 am: Patient #1 needs extra IV potassium. I grab a bag from the drug room and hang it on the IV pole. The day-shift staff begins arriving. I actually have a minute to swallow my dose of my medication, which helps relieve spasms related to dystonia.

7:26 am: Before giving a verbal report to the day shift, I review any last-minute orders to make sure nothing was missed. Nothing missed. It’s going to be a good day!

7:45 am: Shift over. Scalp pain erupts. Neck twisting and turning begins. I just want to sleep.

Intensive care nursing with dystonia is not for the faint of heart, but it is possible—and rewarding!


National Institute of Neurological Disorders and Stroke
Includes a detailed fact sheet on everything you need to know about dystonia

Dystonia Medical Research Foundation
Provides information on current research efforts, treatment and support options, and how to get involved

Dystonia Health Global Monitor
An open forum consolidating the latest news, research information, and education resources for a wide range of movement disorder issues

Deep Brain Stimulation
Explains how DBS therapy works and the risks involved

Skills for Success: What Every New Nurse Needs

Skills for Success: What Every New Nurse Needs

No one can say nursing is a stagnant profession. Even freshly minted grads can feel they are scrambling to keep up with new procedures, technologies, treatments, and processes. If you’re a nurse, you might start to wonder what skills you will need to succeed and stay current in the coming years.

There are a few qualities shared by all successful nurses. Being an excellent multitasker, having empathy, and being nearly obsessed with details never failed a nurse. No matter what your specialty, your location, or your aspirations, experts agree that a few skills in your wheelhouse will not only advance your career, but also help you satisfy your goals of being the best nurse for your patients.

“The first thing you have to have if you want to be the best nurse possible is you have to really want to do it,” says Leigh Goldstein, assistant professor of clinical nursing at the University of Texas at Austin School of Nursing. “You really have to want to be a nurse and not just bring people pills and plump pillows. To get there, you have to put in the hours and put in the study. There’s that little thing in you that tells you, ‘This is it,’” says Goldstein. “It makes learning all the other skills easier.”

LaDonna Northington, DNP, RN, BC, professor of nursing and the director of the traditional nursing program at the University of Mississippi Medical Center, agrees that nurses need a passion for the job. “This is not for the faint of heart,” she says.

Looking ahead, here are some of the essential skills nurses will need to meet job demands at any career juncture.

Develop Critical Thinking/Critical Reasoning

The best nurse thinks outside the box. Adapting to changing situations, unique patient presentations, unusual medication combinations, and a rotating team takes awareness. Assessing and evaluating the whole picture by using the critical thinking developed in school and on the job is essential to success. 

“Nursing is not like working in a bank,” says Goldstein. “It’s not 9 to 5. It’s always a unique set of circumstances. You have to tailor and adjust the care you deliver based on the picture the patient is giving you.”

According to Northington, nothing in nursing is static. Nurses can’t usually just treat one patient issue—they have to determine how the patient’s diagnosis or disease has affected them across the lifespan, she says. And nurses have to consider not just the best choice for the patient and the best option for the nurse right now, but they also have to consider those things in light of the city they are in, the timing, and the resources they have at hand or that are available to them.

Make Friends with Technology 

Nursing moves fast, but technological advances are sometimes even faster. While new nurses might lack years of direct patient experience, they often have essential technological familiarity. “Most nurses are probably aware that the world of electronics has just taken over,” says Barbara Vaughn, RN, BSN, BS, CCM, chief nursing officer of Baylor Medical Center in Carrollton, Texas. “The more senior nurses who didn’t grow up in the technology world tend to struggle more than nurses who grew up with that.”

With apps that allow nurses to determine medication dosages and interactions and websites that allow patients access to electronic health records, technology is an integral part of modern nursing. “Technology is changing how we practice and will change how nurses function in the future,” says Vaughn.The benefits are incredible. Instead of having to make the time-consuming drive into the ER when needed for an emergency, a specialist might now be able to save precious minutes by first examining a patient remotely with the help of monitors and even robotic devices. Nurses will have to adapt to this new way of doing things.

Nurses have to practice with technology to gain a fluent understanding, says Vaughn. Vaughn, who is studying for her PhD, says she didn’t grow up with online training as the norm, so when her new classes required online work, she wasn’t prepared. Realizing this could be a hindrance, Vaughn asked newer nurses about how to do things, and she practiced navigating the system until she became better at it.

Whether you are accessing patient records, navigating online requirements for a class, or learning a new medication scanning program, technology will improve your work day and help you take better care of your patients. In the meantime, Vaughn just recommends playing around with the computer when faced with something new. In her own department, Vaughn recalls some nurses who were especially stressed out about learning the new electronic health records system. With training and practice, they excelled. “They were later identified as superusers for their unit,” says Vaughn with a laugh.

Adapt to the Broader Picture

With all these developments comes new and greater responsibility. 

“As an inpatient nurse, you used to worry about the 4 to 6 days when the patient was under your care,” says Vaughn. “Now if you are in a hospital based setting, you are going to be more involved in patient population health.” That means an inpatient nurse not only has to get the whole story of what happened before the patient arrived at the hospital, but also think about working with the care team to give specific instructions for when patients get home that will be practical.

“The more specialized medicine gets, the more fragmented health care becomes,” says Northington. Technology and that broad view can help reign that all in—and nurses need to know how the puzzle pieces fit together and where and how patients are receiving care.

“More patients will be followed in nontraditional health care settings,” says Vaughn. “Our world and the world we know is going to change,” says Vaughn of the health care industry. With more patients being followed by health care centers in easily accessed sites like Walmart and Walgreens, telemedicine is going to become more important to understand and to navigate.

Practice Effective Communication

Thirty years ago, communication about patient care was effective, but certainly not at today’s level, says Northington. “We have to communicate,” she says. “You have to ask, ‘What do you know that I don’t know that can help this patient?’ or ‘Are these therapies contradictory?’ Nurses are in that integral place to facilitate that interprofessional education and communication.”

Good communication isn’t always easy. Beth Boynton, RN, MS, author of Successful Nurse Communication, says the most effective communication is based in speaking up and in listening.

Especially in fast-paced and dynamic health care settings, the underlying interpersonal relationships can have a huge impact on how colleagues communicate and relate to each other. Nurses need to not only recognize the dynamics at play, but also learn how to work within the environment. 

“We all think this is easy,” says Boynton, “but we have to recognize this is harder than meets the eye. Be patient with the learning curve.” Nurses might be assertive about speaking up for their patients’ needs, but not for their own, explains Boynton. So, as nurses look to the future, they should be mindful of not only fine-tuning their ability to speak up, but also listening to both patients and colleagues in return without judgment so everyone can work towards the best possible outcome.

Stay Current

“The nurse of the future has to stay committed to learning,” says Northington. “Take what the research is saying and use the best practices. Ask the questions like, ‘Why are we doing it that way?’ and ‘What can I do differently that will produce a better outcome?’”

To be the best nurse, you must stay current in the newest developments. Take the time to learn new procedures, but also recognize where your skills need updating. For example, if you know you’ll need to deal with chest tubes, don’t just assume you’ll know what to do when the time comes. Make an active effort to gain current experience.

Develop Mentoring Relationships

Every nurse needs a mentor. It doesn’t matter what your role is, how many years of experience you have, or even how many months you have been practicing. If you want to advance and learn the intangible skills needed to excel in nursing, you need to actively cultivate a mentoring relationship. Nurse mentors are often found at work, through networks, or within professional organizations.

Refine Your Personal Compass

A little bit of a thick skin will do wonders for any career nurse. “You have to defend your patient from everyone and take care of them,” says Goldstein. That means when a physician makes a call you disagree with or you overhear an unfriendly comment, you need to speak up when it matters and let it roll when it doesn’t.

And some of the personal work nurses have to do isn’t easy, including reflecting on and adjusting for any personal feelings or prejudices they have about patients in an open and honest manner. “We need to be able to take care of people no matter what their circumstances or color or what they did to get here,” says Goldstein. “You can’t treat patients differently. You need to take care of them and not make a judgment.”

Prepare for the Unexpected

You never know what your day will bring, so lots of personal reflection, discussions with others in your profession, and cultivating skills can help you when you are faced with something you’ve never had to deal with before. 

“I think whether you are starting out as a new nurse or you are a seasoned nurse, nursing care is constantly changing, and being flexible to those changes is paramount,” says Princess Holt, BSN, RN, a nurse in the invasive cardiology department at Baylor Medical Center in Carrollton, Texas. It’s not easy, she says, to constantly adapt to new approaches and new practices, but nurses need to sharpen their focus. “When I get frustrated, I always go back to put myself in the mindset of my patient I am caring for or of my physician who is making this order or of the family I am taking care of to find new ways of looking at it. It grounds me and helps me understand.”

Developing all the coping skills to deal with job stress is a personal approach that nurses will cultivate as they go.

New nurses don’t always take care of themselves and the emotional baggage you take with you,” says Goldstein. “You have to incorporate those experiences into a coping strategy that you have to develop on your own. Every nurse needs to figure out what they need to do to handle that.” And if you aren’t able to really learn how to cope, nurses must have the skills to either recognize that some kind of career shift is necessary (maybe even just moving from the ER to postpartum, suggests Goldstein) or to be open to hearing it when others recognize it.

Recognize Your Private Life Impacts Your Career

Nurses have to realize their career choice is 24/7. And while you have to balance your life and leave the hospital behind, you also have to somehow adapt to always being a nurse first. Family picnics can turn into a mini diagnosis session, neighbors might ask you to look at a child’s rash, and your private life can impact your job very directly in a way that won’t happen in other professions. “Nurses are held to a higher standard than the average citizen,” says Goldstein.

Learn Where to Learn

Yes, nurses in school learn the hands-on nursing skills like hand hygiene and infection control, says Goldstein, but, like any nursing skill, mastering them takes time. 

Some hospitals have new nurse orientation programs that help new nurses acclimate to the setting, but if you don’t have that option, rely on your own observations, ask questions, and take classes to help get you up to speed. When you’re on the job, watch others to see how they incorporate things like patient safety into their routine interactions with patients. And Holt, who has worked in departments from ER to interventional radiology, says moving around builds skills. “I have seen it all,” she says, “and there is still more to see.”

Put It All Together

When nurses consider all the skills they need to succeed, some are easier to gain than others. “You need to understand what goes on behind all the mechanics,” says Northington. “It’s the knowledge behind the skills you need. They can teach nurses things. Nurses have the rest of their lives to learn things. We need nurses who know how to think, to problem solve, [and] who know when they are in over their heads to call for help. The most dangerous nurse is one who doesn’t ask a question.” 

And nurses must keep moving forward and adapting even when the pace seems relentless. “We’ve come a long way,” says Northington. “And in 20 years, nursing won’t look like it looks now. Nursing is one of the best careers because it’s always evolving.”